I find it depressing to post here these days. Last week Case went home for two nights and one full day. Then we were transported by ambulance to Children's in Dallas to have another chest tube put in. His leaking lymph system (no better way to put it) just won't heal.
On Thursday or Friday he will have a catheter (a huge central line coming out of the skin) placed on his right chest side in preparation for stem cell collection. He will be hooked up to a machine that takes his blood out, separates the stem cells, then puts the blood back in.
After several days of that, he will be done and he will start another round of chemo. Only this time the chemo is so strong it will destroy his bone marrow... Hence the need for his own stem cell transplant as a way for his body to grow his bone marrow back. It all seems very counterintuitive to give his body back his own cancer-diseased bone marrow, but that's the way it's done. "usually" the cancer doesn't regenerate in the marrow... Um, sure hope not.
It's all very depressing, seeing as how the truth of the situation leaves us inpatient for weeks and weeks to come. I miss Graydon and my house, and my husband! A family of four, what's that? I miss the old Case that babbled and wanted to play or walk. He is so lethargic and literally lays in bed all day long, not needing or wanting interaction.
We have a long, long road ahead of us. There you have it.