I have had some people say that they thought everything was great from my lack of posts. On the contrary, we are still in the hospital! We are day 3 into round 2 of chemo (total of 5 days). We are rounding out our fourth straight week here.
I would like to say that I have survived with grace and poise, but instead I have been filled with severe impatience, anger, bitterness, and resentment. Case, the poor little dude, has endured so much, I can't even begin to describe. I will say, though, that the hospital is made ten times worse all because of adhesives and tapes that are placed all over his body, only to be ripped off once they need to be removed.
He is chest-tube-free, but not because the doctors were okay with taking it out. Yesterday he ripped it out by using his feet! A nurse and doctor were changing the dressings on some bone marrow biopsies and we think his little toes wrapped around the tube and yanked it out! Despite the horrid pain and chaos that ensued, within 30 minutes he was already a new kid...for the better!
He has had several scans, whose results have not been too rosy. These tumors have proved to grow with a vengeance and aren't shrinking as easily as they did the first go around (hence the bitterness, anger, etc).
We are sick of splitting our time up between our two boys. We are sick of Case being so sad and continually being put through so many painful things. We are sick of bad news, and sick of hospital food! We hate cancer, and everything associated with it!
Our floor here at the hospital is shared with general surgery kids (tonsillectomies, broken bones, other non-sick surgeries). So I will also tell you that we are so sick of hearing these "sick" kids wailing because their leg hurts, only to be released the next day, and return to soccer practice the day after that. I can always tell if a patient is an oncology patient or not. Our oncology kids learn that it's not worth crying over every pain, ache, and prick.
The vague idea is that he could possibly go home next week after chemo is done and if we don't have any other things come up, which inevitably will. We keep praying for good results and that Case defies the odds and beats this nasty thing! Sorry for the downer of a post, but it's reality! Keep up with the prayers.