I know we should have been posting more frequently, but frankly, it is an overwhelming task sometimes. To say that we have been on a roller coaster ride is the least. Our sweet little boy has been through so much, and unfortunately, will have to go through so much more. So I am going to try to be brief.
Surgery went well. Dr L was able to remove 95% of the tumor. What is left is some lymph nodes up high in his chest on the left side and some infected lymph nodes in his mesentery (i.e. a "netting" of blood vessels, tissue, lymph nodes and more that support and holds the intestines in their wiggly, curling space).
|Angry and fasting before surgery|
|In the PICU all hooked up|
|On the bright side, our PICU room was right on the East River and we watched boats of all sizes going by|
|Awake the next day!|
|Breathing tube down the throat removed (still has nasal drainage tube coming from the stomach)|
|In the POU!|
|Getting "PT" from nurse Bonita. He had so much fluid stuck in his lungs and he doesn't know to cough it up. So you pound a little plastic thing on their backs to break up the fluid - he wasn't a fan. Note that Graydon is doing it to Bonita!|
|Isn't he still so handsome, even with all the tape and the tube!?|
|First smile since surgery! Notice no tubes!!|
|First "solid" feeding - jello|
|A brief smile with Daddy - these don't last long|
|I know this is a really sad picture, but I needed to post a "real" picture, not just the one or two pictures we got of him smiling. It's easy to only post the nice looking pictures, but reality bites.|
|Our hero, Dr L. Again, Case isn't too thrilled!|
|Case at "home" hanging out watching TV (with his "tail" - his drainage bag). So glad that is gone!|